My Friends!

I'm posting a sad entry for Marty and me. We finished the last of 10 seasons of Friends DVDs this weekend. We have been watching them for a little over a year now and I must say they have helped me laugh through some tough times. When I was pregnant and nauseated- we would watch friends in the evening for distraction. And now with POTS, I need the laughter and distraction more than ever. Who would have thought I could have received so much joy from this wonderful Christmas gift last year. Thank you Marty!

California Sun

I think this was the first time Graham has seen blue sky and sunshine! It was so wonderful to sit for a few hours and bask in the warmth. I think that the weather has a big influence on my spirits. Goodbye winter, hello spring! Please come so I can where skirts and sandals again.

I've never lived by the beach but after this day with my sister and fam I think I could get used to a weekly trip to the sandy shore. There were people playing games on the sand, jogging, and just relaxing to the sound of the ocean. (At the current moment I'm listening to Graham's sound machine of the rolling waves- not quite the same) Thanks to my mom and sister for such a fun long weekend!

Home again

Graham, Nanny Jan and I all arrived home safely. The travel went as smooth as possible on the way there and the baby was an angel. As a side note if you are ever late for a flight get the wheelchair service because they take you right through security. It was great! It was so wonderful to see my sister and her family. We took it very easy, but were able to get a pedicure, go to the beach, watch movies, and play with our cute babies together. I'll be posted pictures soon, but I'm having a little bit of battery trouble. It was so fun to be in the warm sunshine and see green grass. Spring is coming and I'm thrilled! Thanks for all your support and comments... I love them!

Today's the Day

I've been looking forward to this day AND dreading it for weeks. My mom and I planned a trip to California to visit my sister with hopes that I would be doing a lot better mid-February. Well to say the least I haven't been feeling all that well, but we decided to still try and go amongst all the symptoms. We fly out this afternoon so I ask from all friends and fam, please send your prayers and good thoughts my way so I can make the journey! I'll post and let you know how it goes...

Daddy's Work!!

Last Friday Tayva and I went to Marty's work for a couple of hours to help with some decorating (well I just went for the ride!) It was fun to be able to show off our little Graham to his friends. We thought we would take some fun pictures to document this "Daddy and Son work day." Look how cute they both are!

2.6.08

Well my posting as been suffering as of late. I haven't been feeling well and I hate that I've turned into a person that talks about their health all the time. But I must explain that it is difficult to think about anything else. Which is sad!! So for now I'll explain my new found love for the state of Tennessee. I've been receiving help from Vanderbilt University for the past several weeks and it has been so helpful. I'll be undergoing some more testing which might help give me a little more insight into what is going on with my heart rate and other symptoms. The second reason I love this state is that I talked with the most wonderful woman yesterday... Fran from Tennessee! She was amazing and has overcome her POTS. She said she doesn't even have her tachycardia any more! She developed POTS after delivering twins and said 5 years later was able to have a third baby with no trouble afterwards. She said if I saw her today I would never know she ever had POTS. She talked about the struggles and difficulties and made some good suggestions. She was so positive and had a wonderfully thick southern accent. It made my day to hear of her success and to hope for the future. She said there is life now and there is life later... and it will all work out! I believe it will!

Winter White

Again I woke up this morning to beautifully falling snow!  This winter has been so amazing.  It reminds me of the winters when I was a small girl and it seemed to snow daily.  There was always enough snow to make a snowman, snow angel or go sledding.  This winter is the same to me... yet I'm not doing any of the above mentioned activities!  

For those of you wondering about my POTS, again Postural Orthostatic Tachycardia Syndrome, I seem to be making slow progress.  But any progress is good in my book.  I spoke with the nurse practitioner at Vanderbilt again and she gave me some insight into the duration of what I'm going through.  Keep in mind this is what she has seen with other patients (so no guarantee) but she said that around  a year -plus people can function with pretty good stamina and activity level.  I know a year sounds like a long ways away, but for me that means light at the end of a very dark tunnel.  For so many weeks we thought there would be no improvement, so now I hold on to any ray of hope.  Thank you to all for your prayers, fasting concern and support!  We will make it... I love you!