Well Marty and I had a wonderful trip to Stanford. We flew out Wednesday night and our appointment with Dr. Friday was Thursday morning. She was very knowledgeable, understanding, helpful and kind. A few really good things came out of the appointment. She said, after listening to my history, that she believes it is the kind of POTS that will improve with time. She called it transient. She wouldn't commit to any sort of time line for me, but she did say some people are better at six months and others it takes a lot longer. She had some good medication changes that I will be started and also some lifestyle suggestions that will help with the day to day symptoms. It was also very comforting to be able to tell someone how I feel (which is like crap) and for her to say, "Yes that is a normal symptom!" She gave me her contact information and send if I had any questions she would be there to help. Marty and I left feeling hopeful. Which I've learned is often the only thing we have as we wait this out...
hope for light at the end of the tunnel.
On a lighter note, Graham is rolling from his tummy to his back. Here is a little video...
Lastly, but not least-ly it was my little sister Suzy's 22nd Birthday. We had a wonderful family dinner on Sunday for her and last night went out for Sushi. She is beautiful, talented, smart, so so funny and most of all my little Suzkitten! I love you Suz!
The last few days have been warm enough to spend some time outside. I've loved it! I'm so grateful for good friends to get me out of the house. Today we went to an Easter egg hunt with Chelsea and her cute kiddies. Graham didn't do much hunting, but it was fun nonetheless. Here are a few pictures of our outdoor excursions
Well Marty and I had a wonderful trip to Stanford. We flew out Wednesday night and our appointment with Dr. Friday was Thursday morning. She was very knowledgeable, understanding, helpful and kind. A few really good things came out of the appointment. She said, after listening to my history, that she believes it is the kind of POTS that will improve with time. She called it transient. She wouldn't commit to any sort of time line for me, but she did say some people are better at six months and others it takes a lot longer. She had some good medication changes that I will be started and also some lifestyle suggestions that will help with the day to day symptoms. It was also very comforting to be able to tell someone how I feel (which is like crap) and for her to say, "Yes that is a normal symptom!" She gave me her contact information and send if I had any questions she would be there to help. Marty and I left feeling hopeful. Which I've learned is often the only thing we have as we wait this out... hope for light at the end of the tunnel.
